Update on TJ
TJ was featured on the KSBY News on Monday, 6/26. He is doing very well!!
Hi - I'm TJ. My full name is Taylor Jacob Wilson, and I was born on December 15, 1999. I weighed 9.2 lbs. and was 21 inches long.
I guess you could say I'm a pretty special baby. You see, I was born with Apert Syndrome. You'd probably think I
was very unlucky, but the truth is, I have so much love and help surrounding me from all my family and friends, that I feel very lucky in spite of my disorder.
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I have a long and serious journey ahead of me. My parents, Mark and Cynthia Wilson, have spent a tremendous amount of time
educating themselves and fighting for the right care for me. I spent a
good portion of my first month in and out of hospitals learning to eat and
breathe (two very important things, my mom said). I have been
gaining weight and sleeping a little more.
Apert Syndrome is extremely rare. Recent figures show less than 200 cases in the U.S.. It's classified more commonly as a craniofacial disorder, and for me that means
lots of operations with the 1st one now complete and the next one in 3 months Track my progress...
Trust Fund Info
There is a trust fund established for TJ under the name of Taylor Wilson Benefit Trust Account. The trust fund is setup through MidState Bank (Atascadero is the home branch), or a donation towards the trust can be mailed to:
TJ Trust Fund
831 Virginia Drive
Arroyo Grande, CA 93420
For any questions you may have, please e-mail Mark & Cynthia Wilson at mncwil
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